Pioneering Healthcare Change: Enhancing Rare Disease Management Using Non-Clinical Data

 

In the realm of healthcare, how can technology and patient engagement be specifically tailored for rare disease management, aiding individuals in effectively navigating the complexities of both their medical and personal challenges associated with rare diseases?

Rare disease advocate and FinThrive Innovation Director Brian Urban addressed this intricate issue. He advocated for a patient care approach that transcended conventional clinical methods in rare disease management, and further underscored the need for integrating socioeconomic data into healthcare practices. The aim would be to offer a more personalized and effective care system for patients with rare diseases.

“That type of workflow reconstruction with non-clinical data is one of the most impactful things that I’m seeing within this particular space,” Urban said.

Article written by MarketScale.

Follow us on social media for the latest updates in B2B!

Image

Latest

Benchmark
What Is It Like for You to Be Part of the Benchmark Products Teams Now
December 23, 2025

Being part of the Benchmark Products team today means working at the intersection of precision manufacturing and deeply human collaboration, especially in the high-stakes world of cleanroom and sterility assurance solutions. As the organization grows, employees describe a culture that still feels familial—one where clear communication, personal accountability, and genuine care for customers drive…

Read More
Cleaning
Do Your Friends Ever Ask You For Cleaning Tips
December 23, 2025

In a media landscape increasingly shaped by privacy constraints, data clean rooms have emerged as a quiet but powerful way for brands to collaborate without exposing sensitive information, even if, as Will Sepsis quips, some partners would still prefer that “ignorance is bliss.” That tension—between curiosity and caution—captures the moment we’re in, where understanding…

Read More
Clean
Do You Friends Ask You For Cleaning Methods or Clean Their Home
December 23, 2025

At Benchmark Products, where cleanroom precision is part of everyday work, professionals often discover that specialized knowledge doesn’t always translate neatly into casual conversations—especially when friends jokingly wonder if you’ll critique their homes or turn them into germaphobes. The reality is that cleanroom science is about controlled environments and risk mitigation at an industrial scale,…

Read More
cleaner
Has Working at Benchmark Made You Cleaner at Home
December 23, 2025

At Benchmark Products, where clean room discipline is second nature, the habits forged on the job often follow employees home, turning everyday chores into a mindful extension of professional rigor. As voices like Will Sepsis illustrate, working in environments where precision cleaning protects products and people alike can quietly reshape how you see a…

Read More