Pioneering Healthcare Change: Enhancing Rare Disease Management Using Non-Clinical Data

 

In the realm of healthcare, how can technology and patient engagement be specifically tailored for rare disease management, aiding individuals in effectively navigating the complexities of both their medical and personal challenges associated with rare diseases?

Rare disease advocate and FinThrive Innovation Director Brian Urban addressed this intricate issue. He advocated for a patient care approach that transcended conventional clinical methods in rare disease management, and further underscored the need for integrating socioeconomic data into healthcare practices. The aim would be to offer a more personalized and effective care system for patients with rare diseases.

“That type of workflow reconstruction with non-clinical data is one of the most impactful things that I’m seeing within this particular space,” Urban said.

Article written by MarketScale.

Follow us on social media for the latest updates in B2B!

Image

Latest

inclusion
Inclusion Beyond Compliance: What It Really Takes to Build Workplace Cultures Where People Feel Seen, Supported, and Free to Belong
December 16, 2025

Inclusion is often reduced to policies and checklists, but its true measure shows up in everyday experiences — in whether people feel seen, supported, and able to contribute without hiding parts of who they are. When organizations move beyond compliance and toward genuine understanding, they open the door to talent, perspective, and potential that…

Read More
healthcare
How Simulation-Based Education Is Transforming Healthcare Leadership and Decision-Making Worldwide
December 16, 2025

As healthcare systems worldwide face rising costs, workforce shortages, and increasing pressure to balance quality with financial sustainability, traditional classroom-based management education is struggling to keep pace. According to the World Economic Forum, healthcare spending now accounts for nearly 10% of global GDP, making leadership decision-making more consequential—and more complex—than ever. At the same…

Read More
work-based learning
Scaling Work-Based Learning in the Curriculum: How Riipen Powers Real Employer Projects at Scale
December 15, 2025

Higher education is facing renewed scrutiny over how well it prepares students for life after graduation. Employers are increasingly signaling that many graduates enter the workforce without real-world, job-ready experience—placing new pressure on higher education to rethink how learning connects to work. Research on high-impact practices consistently shows that experiential and work-based learning boosts…

Read More
private equity
Alts Innovators: UT Austin’s Dr. Ken Wiles on Private Equity
December 15, 2025

Private equity is entering a period of adjustment after decades of expansion fueled by falling interest rates and abundant capital. That long-running tailwind reversed beginning in 2022, when interest rates rose sharply, disrupting deal activity, slowing exits, and bringing renewed attention to a long-standing vulnerability in private markets: liquidity. Industry reports have highlighted softer fundraising,…

Read More