Pioneering Healthcare Change: Enhancing Rare Disease Management Using Non-Clinical Data

 

In the realm of healthcare, how can technology and patient engagement be specifically tailored for rare disease management, aiding individuals in effectively navigating the complexities of both their medical and personal challenges associated with rare diseases?

Rare disease advocate and FinThrive Innovation Director Brian Urban addressed this intricate issue. He advocated for a patient care approach that transcended conventional clinical methods in rare disease management, and further underscored the need for integrating socioeconomic data into healthcare practices. The aim would be to offer a more personalized and effective care system for patients with rare diseases.

“That type of workflow reconstruction with non-clinical data is one of the most impactful things that I’m seeing within this particular space,” Urban said.

Article written by MarketScale.

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